We compiled a list of reputable resources you may want to consult for additional information related to organ transplants.
Transplant
- Donate Life America
- Live On Nebraska
- Transplant Living
- Transplant Recipients International Organization
- United Network for Organ Sharing (UNOS)
- Department of Health and Human Services Division of Transplantation
- The Coalition on Donation
- TransWeb
- United Network for Organ Sharing
Financial
Heart
Heart Transplant
- International Transplant Nurses Society
- My LVAD
- Thoratec Corporation
- Transplant Living
- United Network for Organ Sharing (UNOS)
Intestinal
- American Society for Parental and Enteral Nutrition
- Cancer Care, Inc. (Sponsored by a grant from Pfizer)
- Centers for Disease Control and Prevention (CDC)
- National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
- The Oley Foundation
Kidney
- National Living Donor Assistance Center
- American Association of Kidney Patients
- American Diabetes Association
- Centers for Disease Control and Prevention
- Health Resources and Services Administration
- National Diabetes Education Program, a joint program of the NIH and the CDC
- National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
- National Kidney Foundation
- Polycystic Kidney Disease Foundation
- Kidney Community Emergency Response (KCER) provides kidney-specific resources for emergency planning and response for patient and providers, including:
- Patient hotline and information
- Preparing for Emergencies: A Guide for Chronic Dialysis Facilities
- Contacting local emergency management: guidance, forms, and template letters
- Nutrition planning for dialysis patients in a disaster
Liver
- American Cancer Society
- American Liver Foundation
- American Transplant Foundation Patient Assistance Program
- Application to Get Transportation Funded by the National Living Donor Assistance Center
- Cancer Care, Inc. (Sponsored by a grant from Pfizer)
- Caring for Carcinoid
- Centers for Disease Control and Prevention (CDC)
- National Digestive Disease Information Clearinghouse (NDDIC)
- New Hearts Transplant Support Group
- The Carcinoid Cancer Foundation, Inc.
- National Living Donor Assistance Center
Lung
- Scientific Registry of Transplant Recipients
- National Foundation for Transplants
- Children's Organ Transplant Association
- New Hearts Transplant Support Group
- Help Hope Live
- Cystic Fibrosis Foundation
- Second Wind
Lung - Books
- I'll Take Tomorrow: The Story of a Courageous Women Who Dared to Subject Herself to a Medical Experiment – The First Successful Heart-Lung Transplant by Mark Gahlke/Max Jennings
- The Power of Two: A Twin Triumph over Cystic Fibrosis, by Isabel Stenzel Byrnes and Anabel Stenzel
- Breathing For a Living: A Memoir by Laura Rothenberg