Treating Parkinson’s plus syndrome

If you or a loved one are not responding to normal Parkinson’s disease treatments, you may have been referred to our Parkinson’s Plus Clinic for Parkinson’s plus syndrome. 

Parkinson’s plus syndrome is a group of nervous system disorders. Together, these disorders may look like Parkinson’s disease, but they are different. 

Like Parkinson’s, the disorders affect the part of the brain responsible for muscle movement and dopamine production. You might know dopamine as the “happy chemical,” but it also sends signals from the brain to the body. A lack of dopamine means trouble for muscle control and movement. 

Four primary conditions fall under Parkinson’s plus syndrome:
•    Lewy body dementia (LBD)
•    Corticobasal degeneration (CBD)
•    Progressive supranuclear palsy (PSP)
•    Multiple system atrophy (MSA)

What to expect during your first visit

Each visit is typically two to three hours long. During your initial consultation, you will have the opportunity to meet with neuropsychology, physical and occupational therapy, nutrition and social work experts. This team will help you or your loved one through the diagnosis. 

We will discuss and evaluate many different aspects of care including movement, speech, swallowing, cognition, urinary/bowel function, blood pressure, mobility, safety, medication, caregiver burnout and more. Be prepared to discuss any of your big concerns and bring any medication and fluids you would normally take during this time. 

After your first visit, future appointments will be scheduled every quarter. 

Refer a patient for treatment 

The Parkinson’s Plus Clinic is the only comprehensive, multidisciplinary clinic in the region that specializes in caring for those suffering from PSP, MSA and CBD. These diseases are rare and can be misdiagnosed, so it is important for patients to consult with providers who are very aware of the symptoms of the disorders. This familiarity is reassuring to family and patients, who will find support and understanding at our clinic. 

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